Every Parkinson’s medical trial needs healthy non-affected volunteers as the “control” side of experiments testing effectiveness in the battle against Parkinson’s disease, as well as willing participants who are Parkinson’s patients. Don’t panic, we’re not talking about taking anything dangerous or beyond your comfort level, but these research studies rely on willing volunteers to help assess the effectiveness of ways to diagnose, treat, and defeat Parkinson’s. Every trial has extensive and carefully followed and monitored protocols, and, of course, you would never register for something that makes you uncomfortable. In most instances, your reaction when learning about a particular volunteer study need, will be, “Oh, is that all?”
The Michael J. Fox Foundation for Parkinson’s Research now has a new tool, the Fox Trial Finder, working like the most health-changing dating service you can imagine — it links willing volunteers to trials that are so dependent on us for success in observational clinical trials (involving no drugs or treatments) and interventional clinical trials, where new treatments, vitamin and mineral plans, lifestyle change tests, detection and diagnostic methods, quality of life studies, and more are tested.
Fox, because of his fame and high profile before and since his diagnosis with Parkinson’s, has been responsible for shining so much important light on this issue and tirelessly working to find a cure for the five million Parkinson’s patients worldwide.
All you need to do is create a profile so studies can find you and let you know about opportunities to participate and be part of the answer for any trials that feel right for you. It’s important and heroic work, and a volunteer opportunity to truly leave a legacy.
Check it out and learn more:
This is one o’ those.
Selfie to Space gives you the opportunity to add your photo to the new test model of the LightSail, launching in a few days. The Planetary Society DOES, in fact, have some very cool volunteer opportunities you should check out, to be a space advocate and more great engagements.
But about that LightSail thing–what the heck is it? It’s a citizen-funded space project — a solar-powered reflective sail using the sun’s energy for propulsion. It’s about 344 feet square and looks an awful lot like the big brother of those foil screens you put in your car’s windshield to block the sun on hot summer days. It heads into space all folded up into a cube the size of a loaf of bread, hitching a ride on other spacecraft until orbit, then it unfurls its mylar sails that are ridiculously improbable and delicate–less than 1/4 the thickness off a garbage bag. And your digital image will be on board.
Theis project is happening thanks to Bill Nye the Science Guy the super science dude Neil DeGrasse Tyson.
Sending your selfies is free — sign up, send the photo, Tweet about it (#SelfietoSpace), and you even get a certificate…but toss a few bucks at the project too (support link here).
I’ll see you on board!
There’s a particular type of giving and service I like to point out whenever I find it—I refer to it as “no skin off my ass” giving. These are the actions that don’t interfere with your everyday routines, yet can, with minimal effort, make a difference in the lives of others.
There are, of course, outstanding opportunities around the world to really dedicate your all—energy, time, sweat, and tears—and I hope you’ll find plenty of those options here and elsewhere. But how about something you can do on any old Tuesday afternoon…or Thursday morning…or any time at all. Actions so simple yet still impactful…the only question that remains, is “Why not…?”
Here’s one: Why not take a picture to give a pair of shoes to a child in need?
From May 5 – May 21, if you simply Instagram a photo of your bare feet with the hashtag #WITHOUTSHOES, TOMS Shoes will give a new pair of new shoes to up to one million kids who need them. The company always has a one for one practice, where with every purchase you make a new pair is also given to a child somewhere in the world (TOMS does amazing “Shoe Drop” trips to communities across the globe, having donated over ten million pairs of shoes and they have also given one million pairs of shoes to children in need in the United States).
There are some cool things about shoes that make tangible differences in life—differences we don’t often consider since most of us don’t lack for some sort of footwear.
- Shoes can increase access to education—attendance goes up by 62%.
- Shoes can help treat disease—podoconiosis, a debilitating disease of the feet and legs, is transmitted through bare feet and affects more than four million people.
- Shoes can protect feet from illness—other water and soil-borne illnesses are transmitted though uncovered feet.
- Shoes can improve learning ability—TOMS has created an incentive and recognition program for kids who are screened and treted for amblyopia (“lazy eye”)
- Shoes can provide comfort—nearly 47 million of us around the world are refugees, half of those are children without access to home and basic amenities. Warm shoes change that experience.
- Shoes can encourage healthy lifestyles—with a doubling of childhood obesity in the past few decades, sports shoes increase activity and exercise.
SO kick off those kicks, point your camera down, snap, post, tag, and you’ve just given a child something that truly matters. Why not…?
I have a friend and former co-worker, Jade, who just a couple weeks ago jumped on a plane with her best girlfriend to jet from the San Francisco Bay Area to Kathmandu, Nepal.
These two young, inspired women were off on a grand adventure, volunteering with local NGOs along the way, truly dedicated to making a difference. Their first volunteering gig was in Nepal, with an organization dedicated to supporting those who are caught in the sex trade and human trafficking web. The organization they were serving, Volunteers Initiative Nepal, is a local enterprise focusing specifically on a small community outside Kathmandu. Jade and Danielle were ensconced with a local family and spent every day working on communication and life skills enrichment with the women and girls finding their way out of the sadly thriving sex traffic industry.
Then the 7.8 magnitude earthquake hit Nepal. It took many painful hours of waiting to learn that Jade and Dani are fine, though everything they were just adjusting to as their new normal is completely, and literally, upended.
They now have a brand new focus: getting vital food and survival supplies to the small community they serve. They are collecting food staples (bags of rice, etc) and blankets, temporary shelters, and other necessities. They would drive through the rubble and rapidly assembled tent cities, go as far as they could from the capital toward the village until arriving where the road is blocked by debris, then hike the remaining two hours to deliver essential items. With the slew of aftershocks, the district, Sindhupalchok, (with the highest reported death toll in a tragic statistic already more than 5,000 casualties in the nation, with some estimates anticipating that number doubling), has now been declared unsafe for these women to continue their direct handoffs. They remain in Kathmandu—Jade was donating blood this morning—to mobilize awareness, raise funds, secure supplies, and hand them off to the men of the village who are still making the dangerous daily trek.
As each of us searches our hearts about how to respond, where to send money, what to do…I encourage you to seek out on-the-ground resources that can have an immediate effect and not get caught up in international bureaucracy and huge organization stasis. The large international aid societies are, by and large, fantastically committed if not always as agile as I would like, but supplies sitting on an airport tarmac are not arriving rapidly enough to tip the balance of need. If you’d like to support the work of Jade directly, here is a link to her fundraising page, originally designed to support her human trafficking advocacy work, now refocused on immediate survival: http://www.gofundme.com/jadeanddanielle
Another fantastic organization on the ground and locally based is IDEX
Their most recently updated statement:
Nepal Recovery and Resilience Fund —
In response to the devastating earthquake in Nepal, IDEX is launching the Nepal Recovery and Resilience Fund to channel 100% of your donations towards immediate disaster response led by our partners, ASHA and WACN.
Organizations like these – that are already embedded in the community – are the first responders to any disaster. They know the region well, and in the early days of a catastrophe such as this, their staff and volunteers are engaged with first aid, light search and rescue, disaster assessments, and delivery of relief services.
Disasters and emergencies such as these affect poor people and rural women disproportionately. That is why IDEX partners are well-placed to respond and will continue to do so.
ASHA Nepal and WACN are both organizations that work with networks of Indigenous women in Okharpauwa, Chhaimale, Kavre and several additional districts in rural Nepal. Their collective membership is over 36,000 women in over 50 communities. Each of these communities has an autonomous local affiliate which have been serving as the hub of community development for years. They are uniquely situated as trusted leaders, educators, and resource people.
IDEX knows that local organizations’ contributions must be front and center following disasters, because it is extremely difficult for international actors to attain a rich understanding of local dynamics and needs on their own. Of course the international community adds value, but local organizations have been there, are there, will be there on the ground, responding to people’s most immediate and crucial needs.
There are so many organizations worthy of support, doing the hard work of disaster response. I encourage you to look deeply and discover the way you would like to make an impact. Times like these challenge our separateness and remind us that we are one global family. I only wish it wouldn’t take disasters to hit this lesson home.
Please use the comments below to let me know of organizations and foundations that you have found and support in their work responding to the crisis in Nepal.
OK…c’mon now. You simply cannot be part of the breathing human race and NOT know that our climate is shifting in some pretty dramatic ways. OK, maybe an infant. If you are a newborn, I will cut you some slack, but everybody else..unh unh.
Now I am perfectly clear that some of us have different theories or thoughts about what is the cause of the change, but we are definitely not in stasis. Whether it is a human-made crisis or completely natural cycle or some combination of both is not my immediate point. My point is, there are absolutely actions we, as a species, can take to not exacerbate the situation…and there are absolutely actions we can take or are taking that can, in fact hasten changes in a bad way. Taking no action pretty much gets us the latter train speeding up toward a mess scenario as well. I’m all about change, but not in this context. Just ask the bucket in my shower catching all the water as it heats up so I can use it to water some plants…or the brown-lawned park down the road…or the farmers in California’s Central Valley where I grew up…
So Vice President Al Gore–inventor of the interwebs, remember him? He has been running a program for some time that I only recently discovered. At the tail end of last year I was in Boston and met several folks that were a part of this movement, and now is the chance for you to join as well. The Climate Reality Leadership Corps is a group of committed citizens who are dedicated to solving the climate crisis now and for future generations. There is no fee to attend training (and the training is actually a pretty deep dive into the science, both physical and sociological science, of the issues)—the next round is happening in Cedar Rapids, Iowa May 5-7. Young people and adults apply and must be accepted (spots are still available) to go through the training and become members of this august community of global activists.
Once you become a leader, you’ve got some work to do–but it’s really cool:
“Within a year of completing the training with the Climate Reality Leadership Corps you are required to perform ten “Acts of Leadership.” Acts of Leadership come in a variety of forms and can be completed in your local community. Examples of Acts of Leadership include giving a presentation, writing a blog, writing a letter to the editor, organizing a film screening, organizing a climate change-related campaign, meeting with government leaders, and organizing a day of action. Most Acts of Leadership will come from giving presentations, including speaking events you arrange yourself and events arranged for you through requests that come in through Climate Reality. The Climate Reality Leadership Corps will offer as much support as possible but you will be responsible for seeking out opportunities to take action.”
Can you hear this calling to you? I sure can (and subsequent trainings, if this is short notice, will follow in Canada and Florida, later this year)
There are so many ways and avenues to finding a connection with the world and celebrate EVERY day as Earth Day. The fact that the internationally recognized celebration of Earth Day is today, April 22, simply serves as a reminder.
The Pachamama Alliance is deeply committed to each of us finding and owning our profound connection to earth (the wordPachamama means Mother Earth), and their mission is:
To empower indigenous people of the Amazon rainforest to preserve their lands and culture and, using insights gained from that work, to educate and inspire individuals everywhere to bring forth a thriving, just and sustainable world.
Up To Us
Programs and resources you can access via Pachamama are a fantastic source for earth steward inspiration. The “Up to Us” engagement pathway has in-person and online learning courses available to all of us, to awaken us to the critical earth-focused issues we face today—it’s a great way to get tapped into a high level conversation about taking a stand and making a difference, and it leaves you empowered, not devastated or deflated. There are several ways to engage, beginning with the “Awakening the Dreamer” symposium, and progressing to other opportunites—check them out here.
This one grabs my heart and imagination and won’t let go–I’ve not yet done a journey with Pachamama, but I absolutely will! These travel opportunities are one-of-a-kind transformative travel excursions to incredibly biodiverse regions of the Amazon and Andes—visits to indigenous communities are AT THE REQUEST of the indigenous partners who invite you to explore and learn and carry their wisdom home.
Pachamama engages in very specific campaigns of advocacy and awareness in tandem with their indigenous partners in Ecuador. Programs are diverse and make a real difference, like “Jungle Mamas” dedicated to empowerment and health for women and girls; “Rights of Nature” working for recognition of the importance of all species and ecosystems; “Yasuni-ITT” supports protection of Amazon regions; “Sarayaku” seeks justice for human rights violations toward the Kichwa people; and “Indigenous Resilience” empowers people throughout the region.
I have been so fortunate in my own life to be connected to a North American Native American tribe, the Nez Perce in Idaho, and one of my brothers in that community taught me a tenet that is found in so many communities—that of the Seventh Generation. When tribal decisions are debated, examined, and executed—especially those affecting the relationship to nature—elders consider their actions in the context of how they will affect the people seven generations from now. Not for their children or grandchildren, but seven generations out. If we figure that generations are 20-25 years apart, wouldn’t it be amazing if Congress and business leaders who make societal laws and decisions for the masses were thinking of their impact 140-175 years hence? It would certainly change the conversations and take responsibility for how we affect our world.
This Earth Day, are there any actions you can take or plans and commitments you can make that you would be proud to have children of 2190 thank you for and acknowledge your important decision? It’s a beautiful way to think.